Category: Dystonia

Why I Started

January 5, 2021.Reading time 1 minute.

Don’t you think the first workday is really the official start to a new year? Before that, I’m floating in neverland. My blog started as an outlet to share my feelings about living with a chronic disease. It has transformed along with me as I learned to navigate my condition and life. Just like 2020, […]

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Thank God for Marijuana

April 25, 2017.Reading time 4 minutes.

As many of you know, I have Dystonia. (You can read more about my Dystonia story HERE) It’s a movement disorder characterized by persistent or intermittent muscle contractions. It’s incredibly uncomfortable and almost impossible to relax. Sometimes my brain feels like it’s in a vice….a grip so tight that I can’t escape or control my […]

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Crack & Chipped

January 27, 2017.Reading time 2 minutes.

Dystonia Awareness Moment: I receive 150 units of Botox every 10 weeks by injection into my neck and upper back. I receive approximately 15 shots. First, my Doctor inserts the needle that is wired to a machine that can listen to the strength/intensity of the spasm. Based off that they decide how much to inject […]

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